Latest News Feed

Rare Disease Outreach: The Ehlers-Danlos Society Launches Australian Learning Conferences in Sydney & Perth
FEATURED
Press Release Dec 9, 2018
Rare Disease Outreach: The Ehlers-Danlos Society Launches Australian Learning Conferences in Sydney & Perth
Becoming ZebraStrong: Ehlers-Danlos Society Launches International Patient Empowerment and EDS Awareness Tour
FEATURED
Press Release Oct 9, 2018
Becoming ZebraStrong: Ehlers-Danlos Society Launches International Patient Empowerment and EDS Awareness Tour

Patient Advocate and International Executive Director Lara Bloom to screen inspiring documentary, "Issues with my Tissues," to empower patients, families, and raise awareness for EDS and associated disorders

Press Release Sep 29, 2020
The Ehlers-Danlos Society Hosts Its First EDS ECHO Summit: A Virtual Scientific Meeting on EDS, HSD, and Comorbidities
Lara Bloom, President and CEO of the Ehlers-Danlos Society, Appointed to a Professorship at Penn State College of Medicine - Pennsylvania, United States
Press Release May 18, 2020
Lara Bloom, President and CEO of the Ehlers-Danlos Society, Appointed to a Professorship at Penn State College of Medicine - Pennsylvania, United States
The Ehlers-Danlos Society Center Opens at Indiana University Health
Press Release Oct 7, 2019
The Ehlers-Danlos Society Center Opens at Indiana University Health
The Bobby Jones Chiari & Syringomyelia Foundation and The Ehlers-Danlos Society to Host 'Diagnosis and Management of Syndromes of the Craniocervical Junction and Roundtable Discussion' at The Royal Society of Medicine, London, UK
Press Release Aug 16, 2019
The Bobby Jones Chiari & Syringomyelia Foundation and The Ehlers-Danlos Society to Host 'Diagnosis and Management of Syndromes of the Craniocervical Junction and Roundtable Discussion' at The Royal Society of Medicine, London, UK
Jameela Jamil Presented With The Ehlers-Danlos Society Patient Advocate Award
Press Release Aug 1, 2019
Jameela Jamil Presented With The Ehlers-Danlos Society Patient Advocate Award

The Ehlers-Danlos Society Nashville Award Ceremony
Press Release Jul 31, 2019
The Ehlers-Danlos Society Launches Its 2019 Global Learning Conference in Nashville, Tennessee
The Ehlers-Danlos Society Congratulates Yvie Oddly on Winning Drag Race
Press Release May 31, 2019
The Ehlers-Danlos Society Congratulates Yvie Oddly on Winning Drag Race

Yvie Oddly Wins the Hearts of the EDS Community
The Ehlers-Danlos Society Awarded $50,000 Donation From Carnival Cruise Line Aboard the Launch of the New Carnival Sunrise
Press Release May 24, 2019
The Ehlers-Danlos Society Awarded $50,000 Donation From Carnival Cruise Line Aboard the Launch of the New Carnival Sunrise
The Ehlers-Danlos Society Announces Worldwide Research Study to Identify the Genetic Cause of Hypermobile Ehlers-Danlos Syndrome
Press Release Mar 8, 2019
The Ehlers-Danlos Society Announces Worldwide Research Study to Identify the Genetic Cause of Hypermobile Ehlers-Danlos Syndrome
International Symposium Convenes to Address Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders
Press Release Sep 28, 2018
International Symposium Convenes to Address Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders

With generous support for research funding, The Ehlers-Danlos Society sponsors International Symposium in Ghent, Belgium, to accelerate collaborative global research into EDS, HSD, their related symptoms and associated conditions.

Born This Way? When Hypermobility Has Its Privileges - and Problems
Press Release May 23, 2018
Born This Way? When Hypermobility Has Its Privileges - and Problems

The Ehlers-Danlos Society Seeks to Build Awareness Among Dancers, Gymnasts, and Acrobats
FRAGILE, but UNBREAKABLE: May is Ehlers-Danlos Awareness Month
Press Release May 2, 2018
FRAGILE, but UNBREAKABLE: May is Ehlers-Danlos Awareness Month
Ehlers-Danlos Society Taps Medtech Maverick and Fintech Innovator to Join Board of Directors
Press Release Mar 12, 2018
Ehlers-Danlos Society Taps Medtech Maverick and Fintech Innovator to Join Board of Directors
Ehlers-Danlos Society Receives Transformational Gift for Genomic Research Into Rare Disorder, HyperMobile EDS
Press Release Feb 13, 2018
Ehlers-Danlos Society Receives Transformational Gift for Genomic Research Into Rare Disorder, HyperMobile EDS

Anonymous donor presents $1 million gift to The Ehlers-Danlos Society to jumpstart groundbreaking genomic research into genetic cause of hypermobile Ehlers-Danlos syndrome (hEDS), a rare, degenerative, and all-too-often painful, disabling connective tissue disorder