BALTIMORE, May 24, 2019 (Newswire.com) - The Ehlers-Danlos Society is honored to have been in attendance at the launch of the Carnival Cruise Line's newly renovated Carnival Sunrise. The ship's new godmother Kelly Arison, daughter of Carnival Corporation Chairman Micky Arison and his wife Madeleine, chose to raise awareness for The Ehlers-Danlos Society at this event.
Kelly Arison is a strong advocate of the Ehlers-Danlos syndromes and hypermobility spectrum disorders, awarding The Ehlers-Danlos Society with a check for $50,000 in a presentation ceremony.
“We are blown away by the generosity of Carnival Cruise Line for choosing The Ehlers-Danlos Society for this incredible honor and for an amazing donation of $50,000 to help us in our global mission,” stated Lara Bloom, executive director of The Ehlers-Danlos Society.
“Spotlighting the Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD) at the Carnival Sunrise's naming ceremony helps us sail farther on our journey towards worldwide awareness and better quality of life for all who live with these conditions. We can't thank Kelly and the Arison family enough for their support.”
ABOUT THE EHLERS-DANLOS SYNDROMES AND HYPERMOBILITY SPECTRUM DISORDERS
The Ehlers-Danlos syndromes (EDS) are a group of 14 heritable connective tissue gene disorders that produce a spectrum of complex problems across multiple systems of the body. The physical characteristics that are common to all types of EDS include hypermobile joints, skin hyperextensibility and tissue fragility. EDS is known to affect more than one in 5,000 men and women of every race and ethnicity. Each person’s case of Ehlers-Danlos syndrome is unique. Severity may range dramatically, even within families. Prognosis depends on the type of Ehlers-Danlos syndrome and the individual.
Hypermobility Spectrum Disorders (HSD)
The hypermobility spectrum disorders (HSD) describe patients with symptomatic joint hypermobility not corresponding to other known conditions. The spectrum of HSD ranges from secondary musculoskeletal manifestations and a simplified categorization of genetic syndromes featuring joint hypermobility.
ABOUT THE EHLERS-DANLOS SOCIETY
The Ehlers-Danlos Society is a global community of patients, caregivers, health care professionals and supporters dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes. Headquartered in Baltimore, Maryland, The Ehlers-Danlos Society is a registered 501c3 nonprofit organization in the United States and a registered charity in the United Kingdom.
Source: The Ehlers-Danlos Society
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